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"Children's palliative care is an evolving specialty and as such our knowledge base cannot remain static. This book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence-based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject." - Susan Fowler-Kerry, in the Foreword. This book caters for readers from different working environments and levels of experience. It is ideal for paediatric nurses with no specialist palliative care knowledge, and also for palliative care nurses with no specialist paediatric experience. Other healthcare professionals and therapists working with children, young people and their families will also find this book invaluable. It will also be ideal for undergraduate and postgraduate health and social care students, and professionals involved in children's hospices, community services and charity groups. "This book captures not just the rapidly evolving evidence base, but also as many current developments as possible and applies them in a meaningful way to the care of infants, children, and young people living with life-limiting illness, and their families. It offers an overview of contemporary issues and helps to stimulate the type of dialogue that can bring about the actions that will make a real difference for the children, young people and families in our care." - Rita Pfund, in the Preface.
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some will survive and live out a normal life expectancy, others will have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their health care systems are prepared. This book aims to open a global discussion of these issues. Drawing on author Rita Pfund's 2007 text Palliative Care Nursing of Children and Young People (Radcliffe Publishing) it invites paediatric palliative care professionals, parents and chidren from around the globe to share their knowledge and experience it will be of interest to paliative care professionals, parents, policy makers and academics who have an interest in ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Nurses and healthcare professionals are constantly faced with ethical and philosophical dilemmas when working with children in everyday practice. Ethical and Philosophical Aspects of Nursing Children and Young People is a comprehensive text on the ethics and philosophy behind paediatric nursing that reflects the contemporary issues encountered while working with children and young people. The title provides a philosophical and historical analysis of the subject, looking at a review of sociological and political theories concerning the nature of childhood, and providing a critical analysis of contemporary notions about childhood. It then goes on to look at moral theories and their application to paediatric nursing practice, ethical issues when caring for children of all ages, from infancy to adolescence. It considers issues of disabled children, confidentiality, mental health issues, children's rights, and pain management. With case studies and activities throughout, this book will enable students and newly qualified nurses both to understand philosophical concepts and issues but also to articulate their own reflections and observations on these subjects. Written by children's nurses for children's nurses With contributions from internationally recognised experts in the field Reflective scenarios, further reading, extensive referencing, case studies, guided questions, and resources throughout Includes appendices on the RCPCH Guidelines on Withdrawal of Treatment, the ICN Ethical Code, the Summary of the UNCRC, and the RCPCH Guidelines for the Conduct of Ethical Research
Children's and young people's (CYP) nursing requires special skills and a unique perspective. The Oxford Handbook of Children's and Young People's Nursing gives concise, practical and expert advice on all aspects of the nurse's role. Helping you achieve the best possible results for your patients, the authors offer a wealth of recommendations, guidance and information from their years of experience. Whatever situation you are in, the Oxford Handbook of Children's and Young People's Nursing will give you the information you need. This second edition has been fully revised to include the most up to date legislation, policy and practice including significant changes in child safeguarding, immunisation, medicines, resuscitation protocols and the common assessment framework. It also includes the updated NICE guidelines on various aspects of child health care including the management of children with asthma and fever. The chapter on neonatal care has been expanded and enhanced toinclude care and breastfeeding of the pre-term infant, as well as developmental care and kangaroo care. Additional and updated topics include working with diverse communities, cochlea implants, intussusception, and a revised chapter focusing on professional issues - including new topics such as research and involving young people in health services. Designed to allow any nurse to deliver safe and effective care, basic principles and emergency protocols enable action to be taken in any setting and without expert assistance. The contents are arranged to mirror the key concepts of CYP nursing. Core content includes assessment; management; and advice to the family; with sections on recognition of deviations from the norm; the interpretation of clinical findings and investigations; and measures to promote successful care practice. Key topics include normal growth and development, religion, culture and spirituality, professional issues, pain, palliative care and a separate section onpaediatric emergencies. So you can find the information you need without delay, the book is clearly laid out and concisely written in an easily readable note-based style. All this is available at your fingertips, in a pocket-sized handbook with hard-wearing plastic covers. Written by practising nurses and subject experts, the Oxford Handbook of Children's and Young People's Nursing 2e continues to be a unique and invaluable companion to practising and student nurses, and to all who need to understand the special issues associated with children's and young people's nursing.
Care Planning in Children and Young People's Nursing addresses a selection of the most common concerns that arise when planning care for infants, children and young people within the hospital and community setting. Clear and detailed, this text reflects both the uniqueness and diversity of contemporary children's nursing and utilizes images and case studies to provide a holistic insight into the practice of care planning through the reporting of best available evidence and current research, policy and education. Divided into sections for ease of reference, Care Planning in Children and Young People’s Nursing explores both the theory and practice of care planning. Chapters on the principles of care planning include issues such as managing risk, safeguarding children, ethical and legal implications, integrated care pathways, interprofessional assessment, and invaluable parent perspectives. Additional chapters on the application of planning care examine the practical aspects of a wide range of specific conditions including cystic fibrosis, obesity, cardiac/renal failure and HIV/AIDS. Each chapter is interactive, with questions, learning activities and points for discussion creating an engaging and enquiry-based learning approach. Care Planning in Children and Young People’s Nursing is a definitive resource, reflecting innovative practice which is suitable for undergraduate and postgraduate nurse education.
“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.” From the foreword by Simon Davies , CEO Teenage Cancer Trust This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multidisciplinary work, interagency co-operation and resource issues. This title is essential reading for community children’s nurses, specialist palliative care teams, children’s hospices, school nurses, social workers and student nurses as well as families. A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses Timely and topical, tying in with the Department of Health palliative care strategy ‘Better Care: Better Lives’ Written in an accessible style that does not assume either detailed medical or theoretical knowledge Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital Provides valuable insights into the experiences of parents, children and young people
Underpinned by a rights-based approach, this essential text critically analyses the theory and practice of children and young people’s nursing from several perspectives - public health, acute and community based care, education and research. Chapters address the clinical, legal, ethical, political and professional issues and controversies which impact on the care delivered to children, young people and their families both nationally and internationally. This new edition continues to promote reflection and critical thinking about the practice of children’s nursing and professional development.

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