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This text captures many developments and applies them to the care of infants, children, and young people living with life-limiting illness, and their families. It helps to stimulate the type of dialogue that can bring about the actions that can make a difference for the children, young people and families.
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some will survive and live out a normal life expectancy, others will have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their health care systems are prepared. This book aims to open a global discussion of these issues. Drawing on author Rita Pfund's 2007 text Palliative Care Nursing of Children and Young People (Radcliffe Publishing) it invites paediatric palliative care professionals, parents and chidren from around the globe to share their knowledge and experience it will be of interest to paliative care professionals, parents, policy makers and academics who have an interest in ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.” From the foreword by Simon Davies , CEO Teenage Cancer Trust This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multidisciplinary work, interagency co-operation and resource issues. This title is essential reading for community children’s nurses, specialist palliative care teams, children’s hospices, school nurses, social workers and student nurses as well as families. A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses Timely and topical, tying in with the Department of Health palliative care strategy ‘Better Care: Better Lives’ Written in an accessible style that does not assume either detailed medical or theoretical knowledge Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital Provides valuable insights into the experiences of parents, children and young people
Care Planning in Children and Young People's Nursing addresses a selection of the most common concerns that arise when planning care for infants, children and young people within the hospital and community setting. Clear and detailed, this text reflects both the uniqueness and diversity of contemporary children's nursing and utilizes images and case studies to provide a holistic insight into the practice of care planning through the reporting of best available evidence and current research, policy and education. Divided into sections for ease of reference, Care Planning in Children and Young People’s Nursing explores both the theory and practice of care planning. Chapters on the principles of care planning include issues such as managing risk, safeguarding children, ethical and legal implications, integrated care pathways, interprofessional assessment, and invaluable parent perspectives. Additional chapters on the application of planning care examine the practical aspects of a wide range of specific conditions including cystic fibrosis, obesity, cardiac/renal failure and HIV/AIDS. Each chapter is interactive, with questions, learning activities and points for discussion creating an engaging and enquiry-based learning approach. Care Planning in Children and Young People’s Nursing is a definitive resource, reflecting innovative practice which is suitable for undergraduate and postgraduate nurse education.
Nurses and healthcare professionals are constantly faced with ethical and philosophical dilemmas when working with children in everyday practice. Ethical and Philosophical Aspects of Nursing Children and Young People is a comprehensive text on the ethics and philosophy behind paediatric nursing that reflects the contemporary issues encountered while working with children and young people. The title provides a philosophical and historical analysis of the subject, looking at a review of sociological and political theories concerning the nature of childhood, and providing a critical analysis of contemporary notions about childhood. It then goes on to look at moral theories and their application to paediatric nursing practice, ethical issues when caring for children of all ages, from infancy to adolescence. It considers issues of disabled children, confidentiality, mental health issues, children's rights, and pain management. With case studies and activities throughout, this book will enable students and newly qualified nurses both to understand philosophical concepts and issues but also to articulate their own reflections and observations on these subjects. Written by children's nurses for children's nurses With contributions from internationally recognised experts in the field Reflective scenarios, further reading, extensive referencing, case studies, guided questions, and resources throughout Includes appendices on the RCPCH Guidelines on Withdrawal of Treatment, the ICN Ethical Code, the Summary of the UNCRC, and the RCPCH Guidelines for the Conduct of Ethical Research
Palliative Nursing is an evidence-based practical guide for nurses working in areas of practice where general palliative care is provided. This may be in hospitals, nursing homes, dementia units, the community and any other clinical areas which are not classified as specialist palliative care. This book first explores the history and ethos of palliative care, and then looks at palliative nursing across various care settings. It then looks at palliative nursing care for people with specific illnesses, including heart failure, dementia, chronic obstructive pulmonary disease, cancer, and neurological conditions. Palliative care for children and young people is discussed, and then the book finally looks at education and research in palliative nursing. Palliative Nursing will be essential reading for all nurses working with palliative care patients in a non specialist role, i.e. in hospitals, primary care and nursing homes, as well as nursing students. SPECIAL FEATURES Explores the palliative nursing issues related to specific diseases groups Written in the context of the new national tools, i.e. the end of life initiative, preferred place of care, Liverpool care pathway and Gold standards framework. Each chapter includes practice points and cases to allow the practitioner to undertake guided reflection to improve practice Written by nurses for nurses Provides guidance for nurses working in all four countries of the UK
Essential Nursing Care for Children and Young People is the definitive guide for all nursing and healthcare students and professionals caring for children and young people. Designed to meet the 2010 NMC competency standards for pre-registration nurses, the textbook supports you through the process of caring for children and young people with varied needs and conditions across all healthcare settings. A practical, patient-centred approach is taken throughout, with the ‘voices’ of children, their families and their carers used to tie theoretical knowledge to the real experience of providing care. The inclusion of the latest research and health and social care policies ensures that you are fully in line with the latest clinical practice, whilst the book’s activities and exercises allow you to regularly check your understanding and develop confidence during your journey from student to nursing professional. Main features: Course-Focused Approach – pedagogy and content designed specifically for all three years of the child nursing degree programme. Contemporary Content – research note features and policy integrated throughout to give you instant access to the latest evidence-based practice. Illustrated Throughout – this highly accessible text regularly uses pictures and diagrams to highlight key issues. Voices – include authentic experiences of children, young people, parents, carers and professionals to help develop a patient-focused attitude to care. Pertinent A&P – includes coverage of all relevant anatomy and physiology for child and young person nursing courses. Practice Guidelines – provide practical guidance on everyday procedures for your quick reference. Activities and Answers – allow you to check your knowledge and build confidence. Specialist Authors – each chapter is written by leading experts in each area. Essential Nursing Care for Children and Young People is the ideal main textbook for all undergraduate child and young person nursing students, as well as professionals wanting to ensure they are using the latest practice. This text is also relevant to any student or professional involved in the health and social care of children and young adults.

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